Cystic Fibrosis PRegnancy-Related Outcome data to Support PERsonal choices
Meet the team
- Dr Jamie Duckers – Project lead, Cardiff & Vale University Health Board
- Jamie is a research active Cystic Fibrosis consultant. He holds a Welsh Government Clinical Research Time Award, and is a Bevan Health Technology Exemplar, the research lead for the All Wales Adult CF Service, and R+D departmental lead for Internal Medicine for C&V UHB.
- Professor David Taylor Robinson, Farr Institute
- David is a social epidemiologist and public health physician at Liverpool University with a background in paediatrics. He has extensive experience of working with CF registry data in the UK and is a co-lead of the UK CF Epidemiological Network and will advise on the statistical analysis of the CF registry data. David will lead Work Package 1 (analysis of Cystic Fibrosis registry data)
- Professor Shantini Paranjothy, Cardiff University
- Shantini is an epidemiologist and public health physician based at Cardiff University and Scientific Lead for HealthWise Wales. She will provide methodological and study management expertise.
- Dr Rhiannon Phillips, Cardiff Metropolitan University
- Rhiannon is a Health Psychologist who has extensive experience in mixed-methods research and in identifying information and support needs for women with long-term conditions when they are starting a family. She will lead Work Package 2 (decision aid development).
- Dr Denitza Williams, Cardiff University
- Denitza is a psychologist with a specific interest in shared decision-making and the use of qualitative methods in the context of women’s reproductive health. She will lead on qualitative aspects of field-testing the decision aid.
- Dr Daniela Schlüter, Liverpool University
- Daniela is a biostatistician with extensive experience of working with CF registry data in the UK. She is a member of the UK CF Epidemiological network. She will supervise the statistical analysis in WP1.
- Cleo Goodchild, Patient and Public Involvement member
- Cleo is a person living with CF. As a member of the Study Management Group, Cleo will contribute to all aspects of the project based on her lived experiences.
- Dr Catherine O’Leary, Lead Clinical Psychologist for the All Wales Adult Cystic Fibrosis Centre, is a member of our decision aid development group
- Mrs Alison Prosser, Lead Cystic Fibrosis Specialist Nurse, for the All Wales Adult Cystic Fibrosis Centre is a member of our decision aid development group